From Frankenstein to gene therapy, a collective responsibility. A glance from (bio)ethics

Elisa Constanza Calleja-Sordo, Jorge Enrique Linares, Elena Arriaga-Arellano

Abstract


Given the recent developments in biotechnology and genetic engineering, the ability to eliminate genetic diseases from the human genome seems more and more possible each day. Being able to do so would mean a better quality of life for those who would otherwise suffer from incurable genetic diseases.

However, even though the success of such a procedure would bring benefits that cannot be obtained by other means, the consequences for humans are still unknown. As such, the people involved should be held responsible.

The responsibility needs to be collective, not individual, because the decisions leading to the edition of a human genome and someone being born as a result of it are not made by a single individual, but several people, from the prospective parents interested in the intervention for their future child to the ones in charge of performing said intervention.

The addition of the human genome can bring significant benefits, and it seems to be the only way to avoid certain genetic diseases; however, collective responsibility should be taken by those involved in the decisions that lead to a person being born with a modified genome.


Keywords


modificación genética; bioética; ética médica; genoma humano; enfermedad genética

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DOI: https://doi.org/10.22370/rhv2020iss15pp7-20

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